Extramammary Paget’s disease (EMPD) is a rare intraepithelial adenocarcinoma (skin cancer) that can appear around the genitals, anus, perineum, groin or arm pit areas in women and men. In the rarest of rare cases it can appear elsewhere in the body. EMPD has similarities to Paget’s breast cancer.
Since EMPD is so rare, it is often difficult to find a physician that is familiar with the disease. Further, EMPD symptoms often mimic other conditions slowing diagnosis.
Aggressive surgical intervention is often necessary although other treatments are also used. EMPD begins as an in situ carcinoma in the epidermis and may progress to invade the dermis, increasing the chances of underlying malignancies.
The most common symptoms include a rash or red, scaly, or crusty areas around the genital or anal area. These areas often itch or burn and sometimes bleed. Men often say the symptoms feel like "Jock Itch". Occasionally, patients have no obvious symptoms or only have a slight increased sensitivity in the region.
This website was created by Steve Schroeder after he was diagnosed with extramammary Paget’s disease (EMPD). Now free of EMPD symptoms, Steve works tirelessly to build EMPD awareness and to help connect EMPD patients.
Most commonly extramammary Paget’s disease (EMPD) symptoms appear in the genital, perineum, anal or armpits areas of women or men. In exceptionally rare cases, EMPD can appear elsewhere in the body. EMPD most commonly affects women and men over the age of 40, with the average age being 65. However, there have been cases with patients being as young as 17 years old. EMPD patients frequently indicate one or more of these symptoms… Read More →
While extramammary Paget’s disease (EMPD) is rare there have been a number of medical studies completed on the subject over the years. Due to the limited participation, some of the studies differ in conclusions… Read More →
Extramammary Paget's disease (EMPD) is a rare malignancy that left untreated can be lethal. While half the time a primary care physician makes the initial EMPD diagnosis, it's not unusual for EMPD patients to undergo lengthy ineffective treatments before a correct EMPD diagnosis is made. To speed EMPD diagnosis, those with EMPD symptoms often visit a medical specialist that may be more familiar with EMPD… Read More →
Occasionally a news story or blog is written about extramammary Paget's disease (EMPD). EMPD articles appear here… Read More →
There is a myEMPD support group whose mission is to be a resource to those with EMPD, their families, and their doctors by providing EMPD information and inspiring hope to those affected. Access to the private group is available by invitation. If you or a family member has been diagnosed with EMPD, contact Steve Schroeder for more myEMPD support group information.