Extramammary Paget's disease (EMPD)
Extramammary Paget’s disease (EMPD) stands as an uncommon intraepithelial adenocarcinoma, or skin cancer, primarily manifesting around the genitalia, anus, perineum, groin, or axillae (armpit) regions in both women and men. In exceedingly rare instances, it may present elsewhere in the body. Notably, EMPD shares cellular characteristics with Paget’s breast cancer.
Initiating in the epidermis, EMPD, if untreated, can progress to infiltrate the dermis, heightening the risk of underlying malignancies. Given its scarcity, no definitive diagnostic or standardized treatment protocols for EMPD have been universally established.
The vulva emerges as the most frequent site for EMPD occurrence, accounting for 65% of cases. Approximately 20% of EMPD diagnoses pertain to the perianal area, followed by ... Read More →
EMPD SYMPTOMS
Extramammary Paget’s disease (EMPD) often appears as a red, scaly, or crusty rash in the genital or anal areas. It may cause ongoing itching, burning, tenderness, and sometimes bleeding. Because EMPD symptoms often resemble those of other skin conditions, diagnosis is frequently delayed. Read More →
Recently DIAGNOSED with EMPD?
Receiving a diagnosis of extramammary Paget’s disease (EMPD) can feel overwhelming, confusing, and challenging for both patients and their loved ones. This guide is here to provide support, clear information, and encouragement during the uncertainty that often follows an EMPD diagnosis. Read More →
EMPD Explanations
Extramammary Paget’s disease (EMPD) is a rare skin cancer that can affect sensitive areas of the body and is sometimes connected to other serious internal health conditions. The clinical presentations and reference materials here are designed to give you a clearer, more complete understanding of EMPD. Read More →
EMPD RESEARCH
While extramammary Paget’s disease (EMPD) is rare, research efforts have provided valuable insights into its development, diagnosis, and treatment. Because many studies have involved small groups, continued research remains essential. You can also search for available EMPD studies to learn more. Read More →
EMPD DOCTORS
Extramammary Paget’s disease (EMPD) is rare and often involves several specialists. Because treatment approaches vary, you can explore a patient-recommended list of doctors with EMPD experience to help guide your care. Find a List of Doctors Who Treat EMPD →
EMPD SUPPORT GROUP
The myEMPD support group offers a private, welcoming space for people affected by extramammary Paget’s disease (EMPD). It’s a place to connect, share experiences, ask questions, and find helpful support. Learn More About the myEMPD Support Group →
EMPD Patient Profiles
Discover the personal stories and lived experiences of individuals affected by extramammary Paget’s disease (EMPD). These profiles reflect a wide range of journeys, offering honest insights into the challenges, treatments, decisions, and outcomes faced by people impacted by this rare condition. Read More →
EMPD Treatments
Treatment for extramammary Paget’s disease (EMPD) often involves surgery, but other options like topical therapies, lasers, photodynamic therapy, and radiation may also be considered. Because approaches vary widely, understanding available treatments is an important part of managing EMPD. Read More →
Frequently Asked Questions
Find clear, helpful answers about extramammary Paget’s disease (EMPD), including topics such as diagnosis, staging, available treatments, recurrence, and long-term care. The FAQ is here to help you understand the many important aspects and decisions that may arise while navigating EMPD. Read More →
EMPD NEWS
Explore news stories and blog posts about extramammary Paget’s disease (EMPD), including patient experiences, EMPD updates, and public awareness efforts.
The Washington Post: Doctors thought he just had jock itch. Then it spread.
The Washington Post: Hoping to find others, he revealed a cancer often mistaken for ‘jock itch’
EMPD Photos
Extramammary Paget’s disease (EMPD) can vary in both appearance and location, but only a biopsy can confirm an EMPD diagnosis. View EMPD Photos →